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Saturday, 18 February 2012

Fourteen days in limbo

So I had been to my GP about a hot red area along my left hip replacement scar that had appeared after a hot shower and then got worse during the day, and been put on antibiotics.  Went back again two days later because it was getting worse and I was back using crutches to help me walk.  So on the second visit I ended up being admitted to hospital, for what I thought was one or two nights.  Fourteen days later I was finally discharged, though I have to go back for an outpatient appointment on Monday morning to check out how I am doing now that I have been moved to tablet antibiotics.  In hospital I was on i.v. antibiotics, at one time 24 hours a day as it seems that I have a staph infection, though trying to get information from the doctors is not an easy thing.  Why are they like that?  Why do they have to treat you like you are a little child who shouldn't be told because they won't understand; though in this day and age maybe they are more concerned by people wanting to sue over the slightest thing.  Personally I want information, but I could never really understand who was actually in charge of my case.  Maybe I will get more information on Monday.  ???

Finally after I threw a bit of a wobbly they put in a PICC line (Peripherally Inserted Central Catheter) to administer the infusions after five cannulars failed because my veins are so bad.  They just didn't seem to get the concept that when you have cancer the likelihood is that your veins are shot and although I kept trying to tell them that they wouldn't last they just didn't seem to get it.  I am used to them having to dig for veins and more than once when they try to put one in, but when they start to take blood samples from your feet, and they can't think where they are going to put the next one...why do you have to push to have a line put in?  I am just hoping that it can be left in for further treatments, but this is something else they just don't seem to understand / want to discuss.  Then, of course, you come up against who is, or is not, allowed to care for the damned thing.  Evidently you need to have some sort of a certificate to be allowed to clean it and flush it so it may end up being more trouble than it is worth.  Evidently my cancer treatment hospital have to be prepared to take it on, and my GP practice as it needs to be flushed once a week.  It is enough to make you weep.  I am trying to protect my poor veins and the medical profession just doesn't seem to be interested - just send in the next clown to have a dig for a vein, patient won't mind.

Since I got home I have been sleeping an enormous amount.  Not sure if this is because of the new tablets, or whether my body is trying to catch up with all the sleep that you inevitably miss on a hospital ward.  Just wish I had one of those amazing motorised beds as you can get soooo comfortable with minimum effort.

Will just have to see what they have to say on Monday.

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